Our committee is inspired by love for our friend, son, and brother, Jon Hollin, who has courageously been battling Cystic Fibrosis for his entire life. Please watch the video below to learn more about Jon’s story. To honor Jon, and also his cousin Ilene who has CF and has helped our committee so much, ALL proceeds from We Will Rock CF will be donated to the Cystic Fibrosis Foundation.
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Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). The primary issues with cystic fibrosis are that it clogs the lungs and leads to life-threatening lung infections; and as well as obstructing the pancreas and stopping natural enzymes from helping the body break down and absorb food. In the 1950s, few children with cystic fibrosis lived to attend elementary school. Today, advances in research and medical treatments have further enhanced and extended life for children and adults with CF. Many people with the disease can now expect to live into their 30s, 40s and beyond. Since 1955, the Cystic Fibrosis Foundation has been the driving force behind the pursuit of a cure. Thanks to the dedication and financial backing of our supporters–patients, families and friends, clinicians, researchers, volunteers, individual donors, corporations and staff, we are making a difference.
Cystic fibrosis research is definitely a team effort. Scientists across the world are working to understand and better combat this complex disease, with the hope that one or more of the many approaches to therapies will lead to a cure.
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People can help advance the research in several ways:
1. By raising money and getting involved, that will fund these cutting-edge research avenues.
2. By attending “We Will Rock CF” to help raise the money that drives the science ahead!
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